Zantac (Ranitidine)

Prednisone - Day Nine

Today was my first productive day in two weeks!  The birds woke me up around 5:30 despite the white noise of my fan.  I gave up on sleeping at 5:50 and have been going strong ever since.  I finally got some things done at work.  After that I packed away all of the clothing that doesn’t fit Little Sister.  Tonight I went through Big Sister’s stash of old clothing and found a ton of tops that will fit Little Sister.  Bottoms are in much shorter supply, but hey, that’s all the less money we need to spend.  I even found PJs and swimsuits!  So aside from terrible reflux, things are going well and that promise of steroid-driven energy seems to finally have come my way!

I called Dr. Specialist this morning about the reflux.  It was horrible last night.  My throat was on fire.  I got the okay to take 3 Zantac 150 a day instead of 2.  I always take one with the Prednisone in the morning.  I took an extra before dinner and I’ll take the last before bed.  I also bought a bottle of ultimate strength Mylanta to coat my throat.  Little sips every few hours seem to be helping.  Thank goodness!  Hopefully I won’t have to sleep upright like last night.

Today we also started getting ready for Little Sister’s dental surgery next week.  She needs to have at least 8 cavities filled.  Since she has hypotonia she has trouble sitting still (she is constantly moving) and they couldn’t get a clear x-ray at her last appointment, but it’s obvious that a lot of work is needed.  She’ll have x-rays taken again while under anesthesia on Tuesday and they’ll let us know the full extent of the work needed then.

I had a good conversation with the pre-admission nurse this afternoon.  I went through my basic blurb about Ehlers-Danlos Syndrome.  Things always take a bit longer to go through about Little Sister than the average almost 5 year old.  Most kids this age have not been in the hospital 6 times, under anesthesia 3 times, seen a bunch of doctors, have a diagnosed medical condition, etc.  Then we went through the basics like not being potty trained, fine motor challenges, oral-motor difficulties, and so on.  I was surprised by the number of questions they asked, but I’m glad they were pretty comprehensive.

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